HOUSTON — Those who live with sickle cell disease can experience severe pain, which can appear unexpectedly.  Hoxi Jones has lived with sickle cell disease her entire life and was told she wouldn’t live past the age of 20.  She is living proof that through taking care of herself and following up regularly with her doctor that the disease can be managed.

Houston is home to a unique center which treats people with sickle cell disease.  Dr. Modupe Idowu, executive director of the UT Physicians Comprehensive Sickle Cell Center, talked with Deborah Duncan about how this center can provide lifelong care for patients. 

For more information on the UT Physicians Comprehensive Sickle Cell Center, log on to UTPhysicians.com.  

UT Physicians Comprehensive Sickle Cell Center has teamed up with the As One Foundation for the Darling Dash, a 5K/1K run to bring awareness to sickle cell disease.  Dr. Tomia Austin, executive director of the As One Foundation, shared the story of Devaughn Darling who died at the age of 18 due to exhaustion and dehydration during football practice.  His death was related to having sickle cell trait.  The As One Foundation brings awareness to sickle cell disease and sickle cell trait by educating student athletes, coaches and staff about sickle cell and poor hydration.  

The Darling Dash is Sunday, February 24, 2019 at 8:00am at Stude Park in the Heights.   To register, and for more information, log on to utphysicians.com/darlingdash.