Mom suspended from Nextdoor for promoting fundraiser for son's rare disease

Advocacy turns into animosity on social media

A mom’s push to raise awareness for her young son's rare disease led to her being banned from a popular social media site after her own neighbors complained.

When you can not speak, who can help you get the word out?  For 9-year old Wyatt Moore his parents have worked nearly all his life spreading the word on MECP2 Duplication Syndrome.

“It's a very super rare genetic condition that not many people know about,” his dad Jason Moore said.

Wyatt is one of an estimated dozen children in Texas with the rare genetic condition.  It is passed from the mother to the child and in nearly all documented cases, boys are affected.

The condition leads to severe cognitive developmental disabilities, seizures and a life expectancy rarely exceeding 20 years.

Wyatt requires around-the-clock care and the research to find a cure for the genetic condition requires funding, much of it generated through grants and donations.

So Amy and Jason Moore planned a fundraiser for Tuesday at Neighbor’s Casual Kitchen in Lake Highlands and got the word out via social media through Facebook and Nextdoor.com

“My community knows about this, I want other people to know too,” Amy Moore said.

But it turns out her community maybe knew too much.

Other neighbors on Nextdoor complained, saying the site dedicated to garage sales, prowler and coyote sightings wasn’t the forum to ask for donations or promote the event.

“I wasn't ever told - you are over posting and if it continues you will be turned off," Amy Moore said.

Over the weekend, Nextdoor sent an email to Amy informing her they had suspended her account after receiving complaints from her neighbors.

"Calling somebody out because they're trying to help their kid or trying to do something good for a cause - seems a little bit overboard for me," Jason Moore said.

A little overboard for others too.  Some neighbors rallied to the Moore’s side on Nextdoor, one saying “that’s what parents are supposed to do - fight for their kids!”

Nextdoor didn’t respond to a request for comment about the incident but evidently heard the message and reinstated Amy Moore’s account on Monday.

For Wyatt’s parents, they say this is just a minor of hiccup for their family, and they’re remaining focused on tomorrow’s fundraiser.

The event runs from 11 a.m. - 9 p.m. with 20-percent of all restaurant proceeds going to the 401 Project, a parent led group designed to help raise awareness and fundraise for MECP2 cure. 

Copyright 2016 WFAA


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