Two-year-old Roman lives with Shwachman-Diamond Syndrome, a rare blood disorder.  His life depends on the perfect match and for thousands of other people like him, bone marrow is their life line.  Roman's parents, Nicole and Peter Shen discuss the importance of being a part of the national bone marrow registry and how easy it is to help.
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You can also set up your own swab party.  Click here for more information.  
To learn more about Shwachman-Diamond Syndrome (SDS), visit